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Welcome to Finding Your Range, the Podcast which uncovers the truth behind living with hypermobility, Ehlers-Danlos Syndrome and chronic pain. Your host is Jeannie Di Bon, a movement therapist who specialises in working with clients with these conditions. She is also the author of two books - Pilates Without Tears and Hypermobility Without Tears. She is an educator of teachers and therapists in the field of movement for hypermobile patients and speaks regularly for The EDS Society and the HMSA. Jeannie also has hypermobile EDS and was a chronic pain sufferer herself. Her passion is to help others move pain-free. This Podcast features expert guests and patient stories. We hope you enjoy this Podcast. Thank you for listening.
Episodes
Sunday Nov 14, 2021
Sunday Nov 14, 2021
Welcome back to Finding Your Range. We are kicking off Season 2 with an open and honest chat with Lara Bloom. Lara shares her experiences of living with EDS, the challenges she has faced and shares insights into her work at The Ehlers-Danlos Society.
Lara Bloom is the President and CEO of The Ehlers-Danlos Society and responsible for globally raising awareness of rare, chronic, and invisible diseases, specializing in the Ehlers-Danlos syndromes, hypermobility spectrum disorders (HSD), and related conditions.
Lara manages coordinated medical collaboration, raising funds for research, and focusing on the global progression of EDS and HSD. She speaks at conferences all over the world, lecturing to medical students and professionals, and supports specialists in the field by offering her experience as a leading Patient Expert. Commemorating ten years in the field of patient advocacy, Lara was officially appointed a Professor of Practice in Patient Engagement and Global Collaboration at Penn State College of Medicine, USA, on March 11, 2020.
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